My Desire To Be Their Grandma Jill

The reasons I keep my crap together as much as I do

My desire to be the best grandmother I can be is one of the most important things to me. That these children don’t have to see the side of me that my children did. Not towards them, but towards my abusive husbands.

Although, some days these little ones give me a run for my money. The fighting and bickering among the older cousins can be exhausting.

I love these babies so much, not more than I did their parents. I just know about mental illness now, unlike when their fathers were young. I had no idea that something was wrong with me. I don’t think in the beginning I was ill. I believe years of verbal abuse about my size and everything else he thought was wrong with me caused my illnesses. And I have been fighting the good fight ever since. I wouldn’t say I am winning the fight, but I am definetly not losing.

I wake up everyday witht the mentallity of just that. “Today is a new day!” I can pick and choose what version of me that I am going to be. I love me today, so far.

Life Is Good…When I Want It To Be

The alarm goes off, I spring into action. Shower, brush my teeth, do my hair and makeup and tend to the pets. Wake up honey lets go have coffee I tell my husband.

Can we go see the grandkids today? I ask. Do you want to visit the cabin? It is so nice this time of year. I’m having a good day.

Alarm goes off. I say,”Will you shut that fucking thing off.”. My husband asks, ” Want to go have coffee? “. No. I just want to sleep. I do have things to do today. I want nothing to do with any of it. I am absolutely exhausted. No desire to even get out of bed, and definitely not going in public today. It takes to much energy to pretend to be normal, and I am just not feeling up to it today. These are the days I am most use to. And to tell you the truth I enjoy my days of sollitude as compared to the days I am forced to socialize.

I give 100% when it comes to being a mother and grandmother. I put myself in uncomfortable situations all the time when tending to my loved ones. It really takes a toll on my mental illness at times. It is truly exhausting attempting to be the perfect grandparent and parent, I never fail them. In the process I become manic trying to keep up. Everything that goes up eventually must come down. Eventually, I plummit to the ground. You would think after all these years with these mental illnesses I would be expecting it, NOPE. As always the illness sneaks up and bites me right in the butt.

I start all over again taking extra care to take medications and get the rest I so desperately need. It last a week maybe two and the vicious cycle starts all over again.

Today….It was a good day. Tomorrow……We will see.

Rituximab saved my life!

It has been nearly two years since I started the Rituxan infusions, my quality of life increasing with each one. When I first started the infusions my vectra score was a 58. Which meant my disease activity was severe. My most recent blood work shows my vectra score at a 3. Down 55 points. Yes my teeth are paying the price and a bit of hair loss. When I started this journey I was pushing about 360 and on outings sometimes needed a wheelchair or cane. I eventually had gastric bypass, but the weight loss did not help my jont pain. I had tried all sorts of injections, the newest pills. Nothing worked. Then I started the Rituximab infusions. Game changer. I can now play with my grankids unlike with my children, I sat and watched. I am now about 195 and feel better than I have in years. There are side effects, like my teeth. But I will take it any day over the pain and fatigue I felt for almost 18 years. The best advice I can give is, if you think your treatment plans are not working as you would like. Change it, talk to your doctor. If you aren’t happy with your results, look at other options. I hope and pray that you find what works for you and whatever ails you. Life is to short to live in pain.

Young Love

Those lips and how they made me feel,

I’d sell my soul to taste them once again.

Never had anything felt so real,

Thoughts of you pour like rain.

I don’t fight them anymore,         

visiting me in my dreams.

Are you just as you were before,

We, you’ve forgotten it seems.

Nothing ever felt so right in my life,

Together we had been.

I prayed one day I’d be your wife,

In the end our love didn’t win.

But it lives on in my memories,

Two kids in awe of each other.

I miss you when no one sees.

Jill L. Ware

Be You!

Put on your best smile, go that extra mile.

Be courteous and nice, don’t ever think twice.

Lift up one another, be your neighbors brother.

Love with all your might, don’t give up without a fight.

Ask for nothing in return, be the example so they can learn.

Be you, let your light shine through.

Be the spark that leads them from the dark.

Most of all, always be you!

Jill L. Ware

Confessions Of A Disoriented Blogger #2

It was at the young age of 15 that I thought about killing myself. I didn’t feel like I was enough for anyone in my life. I felt abandoned. I started drinking and smoking pot. Not a lot. Just trying to kill the pain.

I always have felt lost. Everything has to change all the time. That’s the BPD a subject for a different day. I suffered depression for many years. But then when I entered into a very abusive relationship, I couldn’t do anything right. I was never the same. I was to fat, dinner didn’t taste good. you name it, I wasn’t good at it.

After some time I started having thoughts of running my truck into semi’s or cliffs. That went on for years. I divorced him after 14 years of abuse. What I wasn’t prepared for was grieving him like I had buried him like he had died. Plus I gave up my son 50% of the time. Eventually, all I could think about is how I was going to do it. I had to wait until the boys were gone. And the minute they were I was in such a hurry I left the car door wide open, door to the house and the knife drawer with knifes scattered everywhere.

I did it, I slit my wrist. Fortunately, I just did a bunch of surface wounds because there wasn’t a sharp knife in the house. I wasn’t allowed knives in the house for years. I struggled for several years with several mood disorders, and was being abused again. I was married to a monster. And until I got rid of him I had no family, and the grandchild I was about to have was not allowed to be a part of my life. He was dangerous. I felt trapped. If I left I had to fear his wrath. I was going to do it the easy way. I took a handful of pills. They made me sick but I am still here.

I still from time to time get thoughts of self harm, Usually after feeling I’ve let my loved ones down. I have a lot to live for, with mental illness we become blinded at times.